We arrived home about 7pm last night, and it's good to be here. Many thanks to Erica, Scott, Robin, and Jeremy for the delicious meal that awaited us - Leif ate tons, pronounced it delicious and exactly what he wanted, and he could definitely taste the love. He's very grateful to get some real food. The hospital meals were good "diner" food, but he is glad to get back to his usual diet. He got a good night's sleep last night; we are getting a rainstorm here and the distant thunder and pattering raindrops are peaceful and relaxing.
Yesterday's doctor visit went well. Although his red blood cell count is low and he will be dragging, he's young and healthy enough that the doctor does not think he needs a transfusion yet. Also they discontinued the steriod he was taking (dexamethasone), and that is expected to lead to additional fatigue. His white blood cell count is now down to 46, which is lower than it was on his first test last Friday.
His uric acid levels are nice and stable, which indicates that his kidney function remains good. His job now is to drink plenty of fluids and keep moving around as much as he can.
Many of you know that Leif's parents live only 20 minutes from the Midcoast Hospital. It was wonderful to be able to see his mom frequently (his dad is traveling on business) and she has generously been dog-sitting and, um, Becky-sitting. Leif got numerous visits from family and friends while in Brunswick, which he enjoyed very much.
Posted by Becky
Yesterday's doctor visit went well. Although his red blood cell count is low and he will be dragging, he's young and healthy enough that the doctor does not think he needs a transfusion yet. Also they discontinued the steriod he was taking (dexamethasone), and that is expected to lead to additional fatigue. His white blood cell count is now down to 46, which is lower than it was on his first test last Friday.
His uric acid levels are nice and stable, which indicates that his kidney function remains good. His job now is to drink plenty of fluids and keep moving around as much as he can.
Many of you know that Leif's parents live only 20 minutes from the Midcoast Hospital. It was wonderful to be able to see his mom frequently (his dad is traveling on business) and she has generously been dog-sitting and, um, Becky-sitting. Leif got numerous visits from family and friends while in Brunswick, which he enjoyed very much.
Posted by Becky
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